Taking Stock of Advance Directives with Bob Roth on Money Radio
Published by Carla Sutter on October 12, 2021
Published by Carla Sutter on October 12, 2021
On October 12, Sara Asher of the End of Life Care Partnership and I had the pleasure of appearing on Bob Roth’s Health Futures podcast, which was broadcast on Money Radio. We sat down for a nice discussion about the importance of Advance Directives—for everyone. The full transcript of our talk is below, and video of the segment can also be viewed here on YouTube.
Announcer: The views expressed on the following program do not necessarily reflect the views of Money Radio staff, management, or advertisers, and do not represent an offer to buy or sell any securities. Some interviews heard on this program may be sponsored by the participants. It’s time for Health Futures with Cypress HomeCare Solutions, Bob Roth. This is Arizona’s only show dedicated to providing you with expert advice on how to live a longer, healthier, and happier life. To learn more. Call 602-264-8009. That’s 602-264-8009. Now here’s your host, Bob Roth.
Bob Roth: Good afternoon. You’re listening to Health Futures-Taking Stock in You, I’m your host Bob Roth, and it must be Friday. And indeed it is. It is Friday, October 1st. Holy smokes. How did it become October? And if you live here in Arizona, you are starting to finally see the weather change, and it is absolutely delightful outside today. We’ve got about 80 degrees, and our nights are starting to get cool. So, we’re slipping into the fall all season. It’s good to be living here in Arizona, for sure. If this is the first time you have tuned in to Health Futures, Health Futures is about how our older adult population can live a healthier, happier life.
Bob Roth: How do we do that? We do that by bringing extraordinary guests to the show. And today is no different.I am pleased to have these two guests here in the studio. I have Carla Sutter. She is the Director of the Arizona Healthcare Directives Registry at Health Current. And I’ve got Sarah Asher. She’s the Associate Vice President, End of Life Care Partnership anchored at United Way of Tucson in Southern Arizona. Welcome to the show, both Carla and Sarah
Carla Sutter: Thank you.
Sarah Asher: Thank you.
Bob Roth: This is such an important topic. And we talk about this often about end of life planning and the keyword is planning because we need to plan and the old adage about if you fail to plan, then you plan to fail. And then, for us, we’re talking about end of life. And it’s so important for people to memorialize their wishes. And I want to jump into this, but before I jump into it, I would love our listeners to learn a little bit about my guests here today, and also why you got into this too, because I know I have two healthcare veterans. Sarah, please share with our listeners about your background, and then we’ll hear from Carla.
Sarah Asher: Sure. Thank you, Bob. Well, I’ve worked in healthcare, literally my whole adult life, mostly in hospitals. So, for about 40 years, I’ve worked in healthcare. And my career shifted in the last six years into one focused on patient experience, and person, and family centered care. And I moved from that to the community side of healthcare, into this end of life care partnership work, which has truly been the most satisfying work of my entire life. I come to this with both professional, and personal passion. I lost my mom to cancer when I was 15 years old, and she was 51 years old. She was a social worker. And way ahead of her time, in terms of expressing her desire to die at home, looking at our giant oak tree in the backyard.
Sarah Asher: And several years later lost a brother to suicide. However, he lived on life support for about a week after he attempted to take his life. And our family had to make decisions in that time that were very difficult. And then fast forward, many years, I cared for my father who was a retired physician and was diagnosed with Alzheimer’s disease. I moved him from my native home of New Orleans out to Arizona, where I cared for him for about six years from diagnosis to death.
Bob Roth: That had to be hard work.
Sarah Asher: Very, very hard work. So, I’m extremely passionate…
Bob Roth: Yeah, you are.
Sarah Asher: …about this and I’m grateful to be here today. So thank you.
Bob Roth: And just real quickly, how long have you been doing this?
Sarah Asher: I have been in this role for about almost four years.
Bob Roth: Four years. Fantastic. Carla, I know a little bit about you, but for our listeners, I know you’re from New York.
Carla Sutter: I am from New York. You’ll hear that.
Bob Roth: Yes, but share with our listeners about a little bit about your background and how you got into this
Carla Sutter: It’s interesting being in this work. And hearing Sarah talk, you’ll hear throughout this that the personal and professional line is so blurred and blended when it comes to end-of-life care and these kinds of conversations. Because this is one thing in all of our lives that we are going to experience no matter what our background is, but my background is as a clinical social worker, and I have worked in social work from literally working with clients from birth to death, started in early maternal health, and with a specialty then in end-of-life care conversations with many years in hospice. And so this really gave me the opportunity to have these kind of conversations with clients, and families who had already made some very difficult determinations, and decisions were facing difficult paths in front of them. And it really just, again, identified for me the importance of not only having the conversation, but having it then documented in a way that we can refer back to almost as a map.
Carla Sutter: And I think that one of the reasons that this is an area that is so key for me is that my family was very open when I was young about death and dying. And so we had a lot of conversations and my parents really treated it us, even though we were children in ways that they were open about what was happening, they did not shield us. They found ways to express things to us in a way that wasn’t scary, or as scary as it could be, but it was something that there was always an openness to have a conversation and it was not shield from us. And so that has kind of stayed with me. And I really have found myself as Sarah has on both sides of the bed. Both as the less emotional professional, but then as a daughter, as a sister, to those that are experiencing this. And the work that needed it to be done and the conversations needed to be had.
Bob Roth: Well, first of all, I think that your family, your parents were a little ahead of the time because they didn’t shield you. And so many of our generation did not have these conversations.
Carla Sutter: Absolutely.
Bob Roth: They didn’t talk about death and dying, and it’s a conversation that we need to have. And really, when you sit down and talk about the work you do, we’re really talking about advanced directives and basically really talking about when you can’t make decisions for yourself who is going to make those decisions for you, and we need to make those decisions known. And as I understand, and please correct me if I’m wrong, it’s Health Current is the group that you guys are both a part of and your mission is to get the word out there that these families, people need to make sure they memorialize their wishes. I just want to make sure I got that correct.
Carla Sutter: Absolutely. So, while the Arizona Healthcare Directives Registry will be with Health Current, and that was based off of Arizona statute, as Sarah, I think, will share throughout the time we have together, the end-of-life care partnership and the United Way of Tucson and Southern Arizona is a partner in the work that we’re doing. And together, I think what we’ll see is this is a community wide, a statewide initiative, and something that has to happen at all levels of provision of care.
Bob Roth: Absolutely. Absolutely. I just had a couple weeks ago, a fiduciary in here recently, and this person was talking about actually it was a woman and a man. They own the fiduciary. And she was talking about, you can either be appointed by us or you could be nominated and was talking about this very thing, because she said, “You don’t want us to be appointed because that means we’re appointed by the courts and we’re going to act on your best interest, and we don’t know exactly what you want”, but you could nominate us and you could have already put all those wishes down. And that’s the crux of what we’re trying to convey to the communities that we live in is please take the time to memorialize your wishes. So I want to ask my first question to you is what is the Arizona Healthcare Directives Registry, and why should we all be excited about it?
Carla Sutter: So, I’m going to answer that, but I have to start with some questions, I think, to be able to make sense of it. So I want us to imagine that we are in a hospital and we cannot speak for ourselves. Who will speak for us, and do they know our wishes? Just similar to what you just said. Imagine that our mom, and our spouse, our adult child has had a medical crisis, they are not expected to recover who will speak to the healthcare team for them? Who will make those decisions. And do they know what decisions need to be made? Now, imagine, again, we have Alzheimer’s, or Dementia, or cancer, brain injury. We’ve been in a tragic car accident. Who will speak for us? We all hope to be able to communicate to the end of our lives, but often that does not happen. And as you said, without a plan, without it being documented, your healthcare team, your family, your loved ones won’t know your wishes and healthcare preferences. And even if these conversations have occurred, but they were not documented, your family will question whether they were remembering correctly, and whether they were making the right decisions, adding an additional layer of burden. Now, in a crisis, can you even locate those documents that you will have to give to your healthcare providers? First responders have the information when and where they need to follow their treatment preferences.
Bob Roth: I hear the music so we’re down one segment. I will tell you, I want to pick up on that. You’re listening to Health Futures -Taking Stock in You. I’m your host, Bob Roth. I’ve got Carla Sutter here in the studio. I got Sarah Asher here in the studio. We’re talking about advance directives and really planning for the future and making your wishes known. Stick around. We got three more segments. We’ll be right back.
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